Transfusion day…

So let me go back a few days.

October 13th my family put together a fundraiser called kickin for a cure. There were 5 teams who played for 5 hours and the winners got a medal. The winners!

The event was. Started of by a performance from Acrofitness.

My son Joey introducing Acrofittness and thanking everyone for coming.Joey introducing me and thanking everyone for coming to support me! Acrofittness doing their thing.Acro and my family.

There were raffles and vendors and a food and ice cream truck.

After the games the raffles were drawn and that was fun. I won a car wash and a necklace. And these were the people responsible for it all.

I love these people more then my life. This is why I fight and why I will win!

After the tournament my best friends daughter had gifted me with a family photo session and because we were all going to be together on the day we decided to do pictures today. We didn’t get dressed up we all look just like this and that’s ok with me. Great memories were made that day! I’ll get the pictures back in a couple of weeks. Then we went to O’ Charlie’s for dinner. 16 of us! By the time I got home I did a short blog but never published on Facebook. So I’m making up for it now.

October 14th I went to work. It was an ok day. I slept through the night which isn’t normal for me but was welcomed! Sunday at work was busy but the day went by fast. Then we stopped at KFC for dinner and took it home. The we I’m speaking of is myself and my best friend Sue who came down for the tournament and to be with me for my next chemo treatment. On to the next day…

October 15th was chemo at 10. By bff Sue and I left the house early to get apple slices, cheese and nuts for our day. We also ran by Hobby Lobby to get wool yarn to make our own dryer balls. Off to Lake Norman Oncology. First we meet with Dr. K who suggest my anemia is way too low and he really thinks I need a transfusion. And he told me all the benefits in comparison to how I’m feeling now. So I said ok. They called and arranged everything. Then he took me back for my treatment. Rick was my nurse and he’s very good. He got me started right away. I are a few apples and some cheese and when he gave me the Benadryl I bid Sue good night and I’d see her soon! I was out. Boy was I thankful she was there because she told me when I woke up that we had to go to the hospital for type and cross match so I could go the next day for my transfusion. So we went to LNRMC for that then to the store to pick up food for my dad and of course delivering the food. It was his birthday and he was mad that we weren’t staying for dinner. But we told him Sue and I would be be back in a little while. We ran home and Carmen from Church had delivered dinner. Terry had to leave to pick up Rylee from Drivers Ed and Sue and I ran to Bruster’s to get dad a chocolate peanut butter ice cream in a waffle bowl and went to celebrate his birthday with him. We ate our ice cream, changed his sheets and told him we would be taking him out to dinner this weekend wish seemed to perk him up a little. Home to wind down and get some sleep.

Me and me BFF Sue!

October 16 and we have been at the hospital since 9:30am to get 2 units of blood. I think I have about an hour to go. This is my nurse and my new blood.

Patty my transfusion nurse! And my new blood behind us.

My new blood.

And in a few minutes I’ll be getting out of here…so my blessings for these last few days and too numerous to count but at the top of that list is definitely family and friends AND so many strangers who came out to support me on this fights! I love you all!

Be blessed,

Diana

#standbyme


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Today was amazing!

I don’t know how I will ever thank my family for what they pulled off today. I couldn’t tell you how many people were there but it was a lot! They played kickball and they had raffles and vendors and we had a pizza food truck and we had ice cream truck it was absolutely amazing. I don’t think I saw anyone upset all day long. Just smiles and great sportsmanship. The money that was raised was over $2500. That’s going to come in handy I promise. Well done my children! I love you with all of my heart!

It’s 8:08pm and in bed. It was a long day so I will apart more to the story.

My blessing for today was seeing all the.people who came out to support my family!

Be blessed,

Diana

#stansbyme

Second Mini Treatment

My week was up an down. The weekend away was nice but it was back to reality Monday. I was ok most of Tuesday, I slept most of Wednesday and had to work the rest of the week.

So here we are today with another mini chemo treatment at 1pm… shoot, I’ve got all morning…let’s get our nails done. Yay Aaron has an opening at 10:20. I’ll be there. All was well. I ran a few errors. And then headed for home. KC was my chaperone for the day so I went home to get my chemo bag together and to walk Jack…(yes we have acquired another dog.) KC pulls into my driveway and as soon as I stepped off the porch to get in her car, I was sick. Like holding it back sick. She talking to me but I just thinking please don’t throw up in this woman’s car!

We get there, I check in and within 5 minutes, we were called back to get weight, vitals and to see the doctor. He asked me how I was and I told him I’m tired and I want to throw up. He asked me why and I told him as soon as I got in the car I felt sick. And I’m not kidding if you suggest something to me like this anticipatory nausea. My head says ok, let’s do to. I need some positive suggestions please! He suggested I take one of my pills before coming in to relax me, so we’ll try it next week. He also said if the fatigue continues to be a problem they will need to do a blood transfusion. Oh joy. He said I am anemic but not because of low iron, just because my blood cells are not producing the way they should because of the chemo. And said it’s pretty normal.

Back at the corral, my regular seat was taken and they were FULL. Only 2 seats available so I chose one and we sat down. A new nurse came over and introduced herself to me, I think she said her name was Darlene. I don’t remember. She accessed my port, drew blood and said she would be back in about 10 minutes. And she was. She was back with my steroid, my Benadryl and something for reflux but I don’t remember what she called it. And 1 2 3 in they all go. I told KC I’d see her on the other side and it was lights out for me. Next thing I know it’s almost 4 o’clock and she is cleaning me up and we removing the needle. I’m done! I go to the bathroom while KC packs up all my stuff and we head to the appointment desk in the front. My appointments are made for the next three weeks, thank you Frank! And out the door we went. KC brings me home and grabs her pan (she made me homemade chicken noodle soup) I give her a hug and off to bed I went. Around 7:30 I tried to eat the soup but it just wasn’t going down! I think I was afraid if I had something in my stomach I was going to throw it up. Maybe tomorrow.

I’m feeling better now. It’s almost 8:30and I’m having peanut butter on graham crackers with milk in the rocks!

I’ll do better about keeping you posted on my week I just was not feeling very good last week.

Today I’m thankful that I got to get my nails done and I’m thankful for KC’s company. My prayer is that I’m not losing my mind, That I’m not going crazy with all of this suggestive BS that I seem to be picking up. Get behind me Satan!

And don’t forget if you’re in the Mooresville area, Saturday is our fundraiser kickin for a cure put on by my kids. It’s a kickball tournament and they’ll be drawings for raffles prizes, vendor booth, acro fitness will be there, there will be pizza truck and there will be an ice cream truck and there will be a me, so come by and see us!

Be blessed,

Diana

#standbyme

Wonderful weekend away!

Terry, Rylee and I had a great weekend away. We have been attending Prepper Camp in Salina, NC for 4 years now and have learned so much to help us as a family if we find ourselves in a grid down situation. Are we completely prepared? No! Are we heading in the right direction. Yes we are. Now I’m not talking about a Zombie apocalypse. I’m talking about if Florence had hit my house and I lost electricity for a while. Would I have enough food, water and supplies for my family and animals. I would have been pretty close!

This year I was a vendor at the event with my SBH coffee. The lady I was next too was giving classes on how to ferment vegetables. I really didn’t think I’d like the way her carrots and cabbage taste but omg was it good. I guess the chemo has redesigned my taste buds. Her name is Suzanne and we talked a lot about fermenting, herbs as medicine and forging. Now I’m no farm girl but I will tell you that forging intrigues me. I love looking for and finding treasures God has provided for us everywhere. Take the pecan trees in my yard. I LOVE going out with an empty bucket and filling it up with free food! And now I’ve found out that most of the weeds in my yard aren’t really weeds but medicines! I’m tickled to death! Like I said, it was a fun weekend. It always is!

Today I had a chemo appointment and was chaperoned by Kathy Mangan…darn I forgot to get our picture! Anyway. Our first stop was to see NP Karen. She said after my over the top reaction to the Taxol last time the doctor said he’d like to try and lower the dose, do every Monday and extend it 10 weeks. 😳 Talk about taking the wind out of my sails. Here I thought I had 3 more treatments and I have 10 to go. She explained that the side effects would be much easier to handle and that if it didn’t work we could try the sister drug to the Taxol. So I agreed to try. I wasn’t happy about it but I figure they know what their doing!

To the back we go. Today my nurse is Rick. He’s very nice and was very busy so we sat there a bit. He finally came to access my port and took blood. Shortly he came back and said it was fine and started my cocktail. Within 3 or 4 minutes I told Kathy to go run her errands and I’d see her when she got back. About an hour later, she woke me up with my lunch (a club sandwich from Big Bitz) It was really good but the fries I couldn’t eat. Fries seem to choke me these days. We finished our lunch, my chemo bag was almost done and we were walking out around 2pm. Fastest treatments date…but I still don’t want to come 9 more weeks!

Today Terry and Rylee came home from Boy Scouts really late. Terry was visible upset. They got some bad news that I really can’t share at this time about a scout leader who needs our prayers. Please join me. God knows who he is.

My blessing for today was a quick appointment and good company even though I slept most of the time! Thanks again Kathy!

Be blessed,

Diana

#standbyme

Breaking point

Again last night I couldn’t go to sleep. My head hurt, my stomach hurt, my heart was racing and I was extremely tense. I just couldn’t relax. I was so uptight even after doing the whole body muscle release exercise my neck was still tight as a drum. I finally fell asleep but it wasn’t long before the alarm was going off to make sure Rylee was in the shower and I laid back down.

Once again my mind was racing. Then I realized, I’m afraid of my next treatment on Monday. I’m trying to get ready for a camping trip. I’m trying to get ready for a vendor show but the elephant in the room is Monday and I can’t concentrate on anything but. As I’m leaving for work I sent Terry a text and told him I was making an appointment to go talk to my oncologist or his nurse practitioner. Something had to fix this. I was a wreck! When I finally got through to someone and she said, what do you need to see him for, I fell apart! I tried to explain but I’m sure I sounded like an idiot! But I didn’t care. I needed to talk to someone and it had to be today! She said we’ll see you at 3.

I got to work and it wasn’t easy to turn off the tears. As hard as I tried, they just kept coming. At about 11:30 my boss showed up to auction off a few units that hadn’t been paid. He didn’t stay long but asked how treatment was going and how I was feeling and I let him know I had an appointment at 3 and I’d let him know after.

I’m in the room and Karen, the nurse practitioner, comes in and she’s asking me questions and I’m thinking I sound like a looney tunes but she says, you are not crazy, I’ve never heard of these things happening to this extreme but it doesn’t mean it didn’t happen. I’m thinking…yea, tell me about it. I told her all about the muscle spasms, the achy joints and the crazy bee stinging sensation. And I added that last evening and this morning my heart rate was racing and how bad it scared me. She reminded me I was not crazy and that she would talk it over with the doctor and they would come up with a plan but that she didn’t want me to spend anymore time afraid of treatment. They were going to find a solution.

I walked out feeling so much better. Actually, I felt better that morning just knowing I was going to get to talk to someone about it! The mind is so powerful but sometimes it’s not in your best interest.

I talked to Terry when I got home and if I’m not happy with what they decided to do, I’m going to say so. I’ll call them Thursday and see what the game plan is!

My blessing for today was finding peace of mind.

Be blessed,

Diana

#standbyme

I went to work today.

It probably wasn’t the best idea but I’m not making money at home. The day wasn’t too bad. I was still a little bit queasy, but I did OK. It’s the muscle spasms and the fatigue that was killing me. I’ll be calling the oncologist tomorrow to see if this is what my last 3 treatments are going to be like. Elaine said they were going to change something but I don’t remember what.

I started the day off starving and ordered a ham and cheese omelette from Corin’s café. It was ok but nothing taste good to me right now. I ate what I could! The morning was a little slow and I was grateful. As the day went on I saw more people come through. I was glad when 5pm rolled around. I picked up a few things for my dad and delivered them. Then home to eat another bowl of chicken noodle soup. Someone brought for the family to eat and I think I’ve eaten almost all of it. It was homemade and really good! Now I’m in bed to read some email and get some sleep.

My blessing for today was having my boys home safe from their hiking trip.

B blessed,

Diana

#standbyme

New kinda chemo

Well Monday I received my first of 4 doses of Taxol. I didn’t do much research on this drug but “heard” it was milder and didn’t cause the nausea the other 2 did. I read there might be joint pain and some muscle discomfort. Ok I can handle that. Some ibuprofen should take care of that. Boy was I wrong. I’ll take you through my last 4 days.

Tuesday usually isn’t too bad because I’m still on a chemo high. I was surprised that toward the end of the day I was feeling sick. To the point that I need to take the nausea meds. I went to bed around 10. I still felt like I was a winner. Nothing I couldn’t handle.

Wednesday I woke up around 3am with awful pain in my knees and ankles. And I was achy like I had the flu. As the day went on I started having little sharp pains from like my rib cage down. The best way to describe it was to say I felt like a voodoo doll in a mad beehive. Little stings all over with no rhyme or reason. On the top of me middle toe, in my vagina, my hip, behind my knee, up and down both legs, IN my rectum and the bottom of my feet. Ibuprofen (800mg) and Tylenol wasn’t touching it. Terry went to work and Rylee to school and I laid in bed wondering how long this was going to last. Terry sent me a text to see how I was doing and I tried to explain what was going on but I really didn’t know how to explain it. I told him I had a couple of the pain killers left from when I had a tooth pulled and I was going to take one. He said good idea and he’d call me later. Well, I took it and 3 Benadryl and fell asleep. Buy the time he got home it was wearing off and coming back with a vengeance. It almost felt like I was in labor. The pain was really unbearable. I tried to eat dinner with them but could only eat a little. I came to my room, took another pain pill and went back to bed. I was awake again in the middle of the night and took 3 more Benadryl and went back to sleep.

Thursday morning Terry came in to check on me. I was curled in a ball and trying not to cry. I promised him I’d call the oncologist as soon as they opened. I’d taken the last pain killer I had and fell back to sleep. When I woke up around 9 I called and left a message. My bff Sue had text me and I was trying to explain to her what I was feeling and the voodoo doll beehive deal was the best I could do. I heard back from my doctors nurse, I explained as best as I could what was going on and she said she’d talk to the doctor and call me back. In the mean time Melanie text to see if I was able to pick up the kids from school and I told her what was going on and that I still haven’t heard from the doctor. I’m not sure what time that was but she told me she was going to go by the oncologist office and find out what was going on. I’m not real sure what she said or how it was presented but whatever happened, she got 2 Rx to take to my pharmacy. One was for a steroid and one was for a pain killer. Only problem was she had to drop it off at the pharmacy, bring Rylee home and take Lia to the doctor. So she called Terry to go get the prescriptions when he got off work. By this time I was so tense and in so much pain I really thought I was going to die. Terry got home around 5:15 and brought me the meds. I had asked Rylee to fix me some toast because I hadn’t eaten anything since that morning. I got a piece down and took the meds and 3 Benadryl and tried to relax. That was the hard part but I finally fell asleep. Terry came back in around 10:30 to give me another round of meds to get me through the night. And I went right back to sleep. Everything was feeling better.

Friday, I woke up with the meds wearing off. It was about 5:15 so I got up to go potty and Terry was packing his lunch. He asked how I was and I said I felt more relaxed but the pain was coming back. He said he’d make me some oatmeal so I could take the meds but I got up and made a bowl so he could get ready for work. I ate the oatmeal, took the meds and went back to sleep until about 1:30. I took 2 more pain killers, got dressed and ate a little bowl of soup. I tried to do a little bit around the house but I didn’t get too far. At about 3 Joey (eldest son) came in with Lia and Terry came home with Rylee. They were supposed to be heading out to a Boy Scout hike but the guide was needing to leave later then they planned. We visited with Joey and I was soon left with Lia. She was so sweet and wanted to take care of me. She wanted a peanut butter bread but couldn’t make it so I did and got her a drink. Most of the rest of the day I laid on the sofa while she colored and talked to me about everything under the sun. Lol By about 4 PM I was feeling hungry and I text Joe (son-in-law) to see what he was going to have for dinner. He told me he wasn’t hungry but if I wanted something he would stop and pick it up. I was feeling a little bit like Burger King and at 5:30 he walked through my door with my dinner. I managed to eat almost all of the hamburger and a few of the fries but I couldn’t get anything more down. Joe and Lia left I guess at about 630 I finished up some papers that I was printing on the computer, took my meds and came to bed. Then I realized I forgot to blog so here I am. So because I need to try to go to work tomorrow I need to go to bed. I’m sorry this was so long. Please pray me to work tomorrow.

By blessing for the past few days was how my family pulled together to help me get through the hell I was going through. Thank you everyone! I love you!

Be blessed,

Diana

#standbyme